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The therapist for the breathing machine just came by and brought my DH a sip breathing machine---meaning when ever you feel the need for some extra air the machine is right next to you and you just take a sip or two...no need to stop everything and go lay down in the bed and use the other breathing machine. We also discussed the phlegm problem and she could see it herself so she talked for over an hour with my DH about the causes and what he needs to do to help it--using the Nebulizer is one way to help it. He used it while she was here and it did help so now he'll use it 2 times a day. I need to keep it cleaned out and also all the hoses need cleaning for the cough assist and the breathing machines. No one told me that before. Lots to do.....and remember how to do it all....
Location: Finally made it to Florida and lovin' every minute!
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Quote:
Originally Posted by cynwldkat
I posted this on the Open House thread first and then decided to post it here too so I just copied and pasted it....sure could use those prayers.......
Not sure if it will make any difference but today I sent a FB message to a NASCAR driver's wife who we knew quite well back in the day... my DH was the one who got him out of CA and out here into NASCAR. We use to do all of his transmissions. My DH did many of the NASCAR and west coast race guys transmissions--he was the best in those years. Of course now they have all new things and there is no "tricks" everyone has the same things. Anyhow I told her I'd heard NASCAR is starting to support ALS and asked if she knew if maybe one of those huge dealerships owned by the many NASCAR drivers around NC would be willing to give us a discount for a wheel chair access van--I'd even sell my truck but but I can't afford any kind of payments. So with a lot of praying and hoping they remember their roots and all of the help my DH did for many of them we will get some good news. I don't even know if she will be able to guide me in the right direction but I'm about ready to contact the dealership itself if necessary. My DH's son would be angry if he knew I asked so I have to be very careful how I go about this. I don't know why--I suppose he feels like he should be helping more--and he should but--but right now I need to help us! Besides this a to much for his son to help with as he has his own responsibilities now. Please say a prayer for us!
Cyn, what a wonderful idea. I sure hope something comes of this. As far as the son goes.....Damn the torpedoes...full speed ahead, girlfriend!
Quote:
Originally Posted by Travelassie
YES, YES, YES!!!!!! This is a great idea, Cyn. And you bet I will say some prayers for you and DH. And I hope you can get some positive response from those folks.
But if I were you I wouldn't worry a whole lot about what your DH's son thinks about your trying to get some help this way.
Exactly.
Quote:
Originally Posted by brienzi
Hope your days get better Cyn and will ask my co-worker who is A Devout Christian to say a prayer for you and your DH..
I'm going to share a short quick story here as I believe in the power of prayer and a higher power. He locked his keys in his car recently and prayed to Jesus to help em..His car was a Toyota Corolla. After praying, he tried the keys from our jeep and low and behold they opened the door to his car. It was miracle that i witnessed.
Miracles do happen and hope no more kitties are taken from you and find the strength to keep on keeping on. Be well, to you and DH..
Wow..what a story. As I like to say, there's no such thing as a coincidence.
Quote:
Originally Posted by cynwldkat
The therapist for the breathing machine just came by and brought my DH a sip breathing machine---meaning when ever you feel the need for some extra air the machine is right next to you and you just take a sip or two...no need to stop everything and go lay down in the bed and use the other breathing machine. We also discussed the phlegm problem and she could see it herself so she talked for over an hour with my DH about the causes and what he needs to do to help it--using the Nebulizer is one way to help it. He used it while she was here and it did help so now he'll use it 2 times a day. I need to keep it cleaned out and also all the hoses need cleaning for the cough assist and the breathing machines. No one told me that before. Lots to do.....and remember how to do it all....
The therapist for the breathing machine just came by and brought my DH a sip breathing machine---meaning when ever you feel the need for some extra air the machine is right next to you and you just take a sip or two...no need to stop everything and go lay down in the bed and use the other breathing machine. We also discussed the phlegm problem and she could see it herself so she talked for over an hour with my DH about the causes and what he needs to do to help it--using the Nebulizer is one way to help it. He used it while she was here and it did help so now he'll use it 2 times a day. I need to keep it cleaned out and also all the hoses need cleaning for the cough assist and the breathing machines. No one told me that before. Lots to do.....and remember how to do it all....
The nebulizer mouthpiece parts and cup only need to be rinsed and left to dry. I can't remember how long it's been since we changed the hose.
In the hospital they don't even do that for days!
The nebulizer mouthpiece parts and cup only need to be rinsed and left to dry. I can't remember how long it's been since we changed the hose.
In the hospital they don't even do that for days!
Exactly. I use one too, Cyn and all I do is rinse them off and let them air dry. I clean them once a week and even that's no big deal, it's just a little bit of dishwashing liquid in hot water, soak the parts for a few minutes and then rinse well and let it dry. I'm like old_cold - I can't remember the last time I changed out the hose. So don't let it overwhelm you. Did they leave you any directions or a CD that you can put in your computer to watch?
No CD--would have been nice but I think I'm getting it all figured out. I agree Old_cold and Lily--I take everything to extremes and I did the same on this but after reading your posts and reading the pamphlet information it's not a big deal--just more.....I already have so much to do but I suppose we make room for it all. I was so upset with myself for not getting even one item listed today but I did have to clean the house and then had to spend a couple of hours with the therapist learning--or attempting to learn new things that need to be done for my DH's health. I have been stressed to the hilt today...lots on my mind today. I just want to finish dinner and relaze so have a good evening all!
No CD--would have been nice but I think I'm getting it all figured out. I agree Old_cold and Lily--I take everything to extremes and I did the same on this but after reading your posts and reading the pamphlet information it's not a big deal--just more.....I already have so much to do but I suppose we make room for it all. I was so upset with myself for not getting even one item listed today but I did have to clean the house and then had to spend a couple of hours with the therapist learning--or attempting to learn new things that need to be done for my DH's health. I have been stressed to the hilt today...lots on my mind today. I just want to finish dinner and relaze so have a good evening all!
Anything new and different seems overwhelming when you first see it and aren't familiar with exactly what's involved- especially when it's piled up there with everything else on your plate. But you'll figure out how best to incorporate the breathing equipment care and feeding into your routine, I'm glad to hear from other folks that the care isn't as cumbersome as you might think it is.
You can't do it all-there aren't enough hours in the day- so don't beat yourself up for something you had on that to-do list. You did what you needed to overcome a major hurdle with your DH's breathing, and that's a BIG accomplishment- the listing will wait-. I hope that the breathing machine and his nebulizer treatments will improve his breathing- I think that must be the worst and most scary feeling in the world not to be able to breathe effectively.
Time to relax and rest.... you've well earned it, dear lady.....I hope both you and DH sleep well tonight, and may tomorrow be a better day for you....
I remember how scary it was to learn how to sterilize baby bottles....and then how simple and routine it became. Don[t sweat it cyn....you will do fine.
Wishing u and DH well Cyn as best you can. I may not post daily, but your thread is inspiring to others..Keep the faith my
friend. And all others here, I wish you a peaceful night and day tomorrow as i wish upon cyn..
Wishing u and DH well Cyn as best you can. I may not post daily, but your thread is inspiring to others..Keep the faith my
friend. And all others here, I wish you a peaceful night and day tomorrow as i wish upon cyn..
The same to you brienzi! I hope that your mother is doing ok......I know it is hard to watch a parent in decline....my father died of Altzhiemer's Disease.
Good morning to all of my dear friends here! Wow, you are all such a breath of fresh air! Thank you so much! DH's breathing is better thanks to the new added items---and I will try not to let any of it stress me---
I hope all of you are doing well and the others that visit here but don't post are well too!
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