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My son has Aspergers and is now 15 years old. He didn't sleep much as a baby. He hit developmental marks very early leaving us thinking what any parent would want to think in this case.
Public school in our district makes it very clear that these kids are not welcomed here and our system will provide the school with legal funds to help "encourage" you to withdraw your child and leave any funding with the district while you are left to figure out how to educate them.
My son is 15 years old and makes straight A's via district funded online school out of Florida. Florida Virtual School.
If I could wave a majic wand and take away my son's diagnosis, I would not do it. At fifteen years old, he has faced more prejudice, and unfair treatment than most of us experiece until we have a mother in law. Just kidding.........
he truely has had to grow up faster than I ever did. He is very literal. Our youth Pastor made an announcement one Sunday that they were going to host a basket ball ralley at our Church. he said, "tell your friends from school to get their teams from their Churches and organizations together and come compete". Not realizing that the teams that he was talking about were establised teams; my son went door to doot in our neighborhood until he had a full team. They even had spares. They practiced several times and even walked (all of them) three miles to our Church for one of their practice sessions.
On game day as buses and vans pulled into the parking lot with organized teams, several cars were needed to bring the group that my son had assembled. They played and were eliminated. But they played.
Some of these kids did not attend Church but began because my son misunderstood the objectives. I Could not be more proud of him.
God didn't make a mistake when our kids were born with Autism. He knew exactly what it is that he wants you and your child to do.
If it were easy, he would have chosen just anyone to raise this child.
hI, TELL US ABOUT AURORA SCHOOL, there is one by this same name in Purcellville, va.
Has anyonedown that way heard ofManus academy
thanks for any info
Quote:
Originally Posted by Aurora Guy
My heart goes out to you in your situation. Perhaps we can help as I am in the process of starting a Special Education School in Morris County. Please let me know if you would like some information about the Aurora School. AllWebCo Website Template
Sincerely,
Gordon
Is anyone else's child non-verbal? I have a four-year-old PDD-NOS son who tries very hard to speak and sometimes gets close, on some words. For example, suddenly, he can count. He'll say, "Yah, hooooo, heeeeeee, how, hi!"
All told I think he has about 10-15 regular words now. He has been in special classes, ST and OT since he was two.
I knew almost immediately that something was "wrong". When C was eight weeks old, he started smiling, but very indiscriminately. When I spoke to him, he would drop asleep--not gently; not relax into it but drop down like he was narcoleptic or something.
He had "colic" for five months (no baby has colic for five months!) and needed to be held continuously, I mean literally, but it didn't matter who was doing the holding. I knew he didn't want me specifically as his mother, or his father as his father. I was back at work, and when I came into the room he wouldn't so much as blink. I'd even call out loudly and cheerfully, or crawl toward him growling humorously, and he wouldn't even look up from his toy. Yet he'd start whining and crying because he wanted to be picked up, but he didn't know how to reach up or look at me to ask.
He also had severe stomach issues and was on Zantac, Mylanta and a specialty $80-a-week formula called Alimentum.
The first time he ever reached his hands toward me to be picked up, he was 11 months old.
After that he was very, very, very attached to me and my DH out of nowhere, and he has never been a problem to hug or cuddle, but he's, well, just not like other boys. He just this year learned what pointing meant. I had been teaching him that for three years. He still can't point to/identify body parts, but once in a while he will now point to pictures in a book.
He "babbles" literally non-stop, all day, and makes a high-pitched squeal much of the day.
He's gorgeous and adorable, blonde with blue eyes. He loves us a lot and is very huggy. He gravitates toward women in general and once he's used to a woman (like if I have a new friend) he will eventually come up to her and throw his arms around her.
His brother, 15 months, has been diagnosed speech and socially delayed but he acts/reacts nothing like C did so when he also wasn't talking, we were shocked, and truly terrified. We're waiting to hear back on what classes will be available to him. They think he may be "modeling" after C.
My husband doesn't believe he's autistic.
I feel pretty much all alone. But wanted to put in my $.02 for other moms and dads of autistic children.
Is anyone else's child non-verbal? I have a four-year-old PDD-NOS son who tries very hard to speak and sometimes gets close, on some words. For example, suddenly, he can count. He'll say, "Yah, hooooo, heeeeeee, how, hi!"
All told I think he has about 10-15 regular words now. He has been in special classes, ST and OT since he was two.
I'm not the mom or dad, but my sister's son was quite nonverbal - really up until the last year or so. I don't know about your child, but my nephew, F, also has some hearing loss and auditory processing problems, so his speech is somewhat garbled. This after about 6 1/2 - 7 years of ST and OT. He's now almost 9. If you know what you are listening for, he actually has a lot of words. He can read like a whiz, you just can't understand it unless you are reading along with him. It's very frustrating to me since I stand on the fringes. His mom can understand him quite well, but when it's babysitting time I usually have a myriad of communication problems. Fortunately, his younger sister, who is 7, can translate a lot of it. He also has a younger brother who is 5 - J seems to be a sharp kid, but at this point he is undergoing evaluation to determine if he has a learning disability or just doesn't get the whole school thing. He can point out constellations but can't count too well and has no clue on his ABC's past about G. Is he mirroring his brother or is there a problem? Interestingly, he cannot translate F's speech....and he is a holy terror. Older brother is autistic, older sister is super bright and #1 at everything she does...they both get special attention because of their disability or accomplishments. I personally think J is just looking for attention any way he can get it and is a normal 5 year old boy to boot, but his mom is worried enough to have him evaluated.
I can't imagine what challenges you all must live with daily.....you are very special people indeed.
I'm not the mom or dad, but my sister's son was quite nonverbal - really up until the last year or so. I don't know about your child, but my nephew, F, also has some hearing loss and auditory processing problems, so his speech is somewhat garbled. This after about 6 1/2 - 7 years of ST and OT. He's now almost 9. If you know what you are listening for, he actually has a lot of words. He can read like a whiz, you just can't understand it unless you are reading along with him. It's very frustrating to me since I stand on the fringes. His mom can understand him quite well, but when it's babysitting time I usually have a myriad of communication problems. Fortunately, his younger sister, who is 7, can translate a lot of it. He also has a younger brother who is 5 - J seems to be a sharp kid, but at this point he is undergoing evaluation to determine if he has a learning disability or just doesn't get the whole school thing. He can point out constellations but can't count too well and has no clue on his ABC's past about G. Is he mirroring his brother or is there a problem? Interestingly, he cannot translate F's speech....and he is a holy terror. Older brother is autistic, older sister is super bright and #1 at everything she does...they both get special attention because of their disability or accomplishments. I personally think J is just looking for attention any way he can get it and is a normal 5 year old boy to boot, but his mom is worried enough to have him evaluated.
I can't imagine what challenges you all must live with daily.....you are very special people indeed.
Wow, SamIAm, my son also has, or rather had hearing issues, and his therapists have tentatively touched upon the possibility of central auditory processing disorder (CAPD), or possibly apraxia/dyspraxia of speech. These wouldn't take away his diagnosis, they'd just be an additional part of it.
We retroactively found out (did I even use that word correctly in this sentence? Quick--somebody call the Grammar Police) that my son had almost certainly had partial deafness in one ear and near-total deafness in the other ear, for more than a year. This was due to repeat ear infections. When we FINALLY got someone to listen to us and were referred to an ENT and then to a hearing institute, he was discovered to have 80% loss in one ear and 50% loss in the other. He then had ear tubes three times and was graded to have near-total hearing in both ears but it's postulated that since he was missing hearing during a very important ear-brain connective time (10 months 24 months of age), his brain may not have made the proper "connections" and now he may never totally be able to process what he hears.
Thanks so much for your input. It is good to talk to people about this.
My son is 16 now. When he was between 1 and 2, I knew something was not right. He wouldn't respond to his name being called, no speech, arched his back when trying to hold him and would have odd play (turning toy cars over and spinning the wheels for hours). Now remember... Back then... autism was not a daily word... 1:10,000.... Now 1:150.... You gotta wonder.
I took him to every specialist under the sun. Hearing (evoked response test) was normal, genetics (fragile X) normal, MRI and EEG all normal. Had him screened through a neurologist, psychiatrist and speech.
I knew he was autistic. Kept saying to ALL the doctors, "this is autism". Didn't get a firm diagnosis till he was a little over 2.
Back then, there was no ABA, TEECH, etc.... He was placed into the public school systems autism program. The area in which we lived since he was diagnosed has opened over 20 classrooms in the county since he was diagnosed (that is how much autism has grown).
Today, he has minimal speech but getting a lot of speech therapy and LOVES when we can understand what he says. He does give eye contact to those he likes. He is fully potty trained (thank goodness) except with some lack of wiping completely after a BM. He does pretty well with change of routine (when before he would tantrum). He still has the hand flapping at times.
If you teach him something once, he doesn't have to be taught again.
He takes one medication - Risperadal. It has been a God send. He is on a very low dose and it keeps him focused so he can learn.
What caused my son's autism? Noone knows. I believe it is genetic and some environmental something set it off. What that was?? I don't know... I wish I did.
I believe one day there will be a test (like PKU) at birth that they can do to prevent the phenotype of autism to come out.
I love my son just the way he is... He is my budman....
God gave him to me because he knew I could handle such a special guy.
God bless all of you who have special children.... He chose YOU for a reason.
it's amazing hearing all of your stories. I am a uncle with a nephew who has been diagnosed with PPD (Pervasive Personality Disorder). He also had hearing problems around 2 years old (wouldn't respond) and his verbal skills were not normal for his age. I told my sister to get him checked out but she had a very hard time believing that he could have a problem. When his diagnosis came through she was unconsolable but getting his diagnosis early was what ultimately has lead him to be self sufficient today to a certain degree.
My son has Aspergers - but it's just ever so slight. We have just started his assesment process to help him learn social behavior better. That's his only downfall. He's in school right now (1st grade) and his report cards are stellar - but he can't for the life of him socialize with his peers correctly. SO he does not have many friends and the kids avoid him as the "Weird kid"
We work with him - but it is so tiring and frustrating. My husband loses his temper often because he wants my son to act like a regular kid - but he's not - so I get frustrated at them going round and round with each other's logic.
My son has Aspergers - but it's just ever so slight. We have just started his assesment process to help him learn social behavior better. That's his only downfall. He's in school right now (1st grade) and his report cards are stellar - but he can't for the life of him socialize with his peers correctly. SO he does not have many friends and the kids avoid him as the "Weird kid"
We work with him - but it is so tiring and frustrating. My husband loses his temper often because he wants my son to act like a regular kid - but he's not - so I get frustrated at them going round and round with each other's logic.
How do you know your son has an "ever so slight" case of Asperger's? My oldest son was evaluated and diagnosed at the same age your son is now. That was almost 15 years ago. How his behaviors and abilites were then and how they are now or over the years for that matter, cannot be compared. I never heard of any doctor knowing that a child of the age of 6 has a slight case. It is something you see evolve on a certain level and I just don't see how a doctor can tell you that at age 6. I hope that his diagnosis is true, I guess I just don't understand it. I have 3 sons all with Asperger's, all at different levels, but essentially all very similar in how the Asperger's presents itself.
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Aurora School
