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Old 08-07-2012, 01:31 PM
 
Location: San Antonio, TX
11,495 posts, read 26,863,876 times
Reputation: 28036

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What did the docs suggest for the sinus infection? Were antibiotics prescribed? Most of us can barely function with a sinus infection, that alone could be causing most of your issues.

About the AC and it being 90 in your room, do your parents own or rent? If they rent, the landlord needs to fix the AC. If they own and can't get the AC fixed, then see if they could put a window AC in your room...it sounds like maybe you're upstairs and the air conditioner is too small to cool the whole house. You could cover your window to try to keep your room cooler...we use the emergency blankets (like a thin mylar sheet) from the camping aisle at Walmart to cover our windows and they block a lot of heat. They cost about $3 and one is big enough to cover an average-sized window.

When you can't sleep, what do you do? Do you just lay there thinking about how you can't sleep? I usually get up and read for an hour or so and then I can fall asleep without a problem. Melatonin is also helpful as long as you have six hours to sleep.

 
Old 08-07-2012, 01:41 PM
 
Location: Southern Illinois
10,364 posts, read 20,791,358 times
Reputation: 15643
The first word that pops into my head is fibromyalgia, but I actually know very little about it except that what you listed sounds like some of the symptoms. Also, gluten or dairy could be culprits and I'd try going without--at least the gluten for 6 weeks--some gluten intolerance symptoms can be strange. Allergies? Well yes it sounds as if you have them pretty bad but I'm willing to bet there's more going on. Oh, and do you have pets in the house? What kind? I had chronic problems when my cat was alive, though none of the symptoms seemed to be directly related and I'm so allergic to guinea pigs that someone could probably murder me by secretly bringing one into the house.
 
Old 08-07-2012, 02:02 PM
 
Location: Texas
95 posts, read 351,714 times
Reputation: 91
I am just beyond overwhelmed with your situation.

You're 16 years old, nearly blind, stay in your room all the time (even though its too hot), and you've had 3 MRI's and take 60 pills a day and you STILL feel awful?

What is your mother doing about this?
 
Old 08-08-2012, 08:13 AM
 
Location: Shreveport, LA
1,609 posts, read 1,600,018 times
Reputation: 995
Anyway, I do want to be stuck like this for life. My life is already 20% over, and despite being sick physically, I am quite active mentally.

I have an IQ of 181, genius line; my ACT score (with extended time) is 36. My absent-mindedness I've found after examination is due to extreme ADD, and my confusion and possibly the slowness at which I process things is probably the allergies.

I have plans in life, but my pain is holding me back in ways. I have always been brilliant and slow working, but this pain and allergy stuff is putting a standstill on what I want to do. If only there was a way to get extended time with work (I own a small, struggling lawn care business... 2 lawns, and I only do them when I feel a little better and it isn't hot... mom wanted me to get some kind of job, but all the young people jobs are taken up by retirees around here! I hate that kind of work, being sick and it being hot (heat is bad about making me nauseous and throw up... every time), but it makes me feel a little less guilty in the end)!

Anyway, school starts tomorrow and my mother is my first block professor again... she always gets that every year for both semesters somehow.
 
Old 08-08-2012, 03:45 PM
 
Location: Middle of the valley
48,518 posts, read 34,821,209 times
Reputation: 73734
For the sinuses I would use a netti pot, or version thereof. I don't get sinus infections, persay, but they get so inflammed that I can hardly move my head.

I have a lot of problems with saying you take 60 pills a day. Any one of your medical doctor's would have put a stop to that, if true.

What medications were they?
 
Old 08-09-2012, 08:52 AM
 
7,099 posts, read 27,178,043 times
Reputation: 7452
If you are using nose drops, and your problem is really allergies, that could account for your sinus problems. Nose drops or sprays actually can make allergies and sinus problems worse by drying out the mucous that is supposed to be protecting you from the alllergens.

Unfortunately, if this is one of your problems, you could be in for a lot of grief as you try to stop using the spray or drops. But it may need to be done.
 
Old 08-10-2012, 06:31 AM
 
Location: Shreveport, LA
1,609 posts, read 1,600,018 times
Reputation: 995
Quote:
Originally Posted by Hedgehog_Mom View Post
What did the docs suggest for the sinus infection? Were antibiotics prescribed? Most of us can barely function with a sinus infection, that alone could be causing most of your issues.

About the AC and it being 90 in your room, do your parents own or rent? If they rent, the landlord needs to fix the AC. If they own and can't get the AC fixed, then see if they could put a window AC in your room...it sounds like maybe you're upstairs and the air conditioner is too small to cool the whole house. You could cover your window to try to keep your room cooler...we use the emergency blankets (like a thin mylar sheet) from the camping aisle at Walmart to cover our windows and they block a lot of heat. They cost about $3 and one is big enough to cover an average-sized window.

When you can't sleep, what do you do? Do you just lay there thinking about how you can't sleep? I usually get up and read for an hour or so and then I can fall asleep without a problem. Melatonin is also helpful as long as you have six hours to sleep.
Well, the doctor just prescribed this antihistimine spray. He said to use it everyday... but in practice I probably miss every tenth dose or so. Yes, the AC is too small for the house we own. I live upsairs in the southwest corner of the house. The window points south. Got to go to class.
 
Old 08-10-2012, 01:51 PM
 
Location: Shreveport, LA
1,609 posts, read 1,600,018 times
Reputation: 995
Back... for a few minutes. Let's see... I take three pills for ADD (focolin and two othe generic pills), two of one prescription for pain, four of tylenol, 4 ounces of allerlydocain (I lost my taste buds for some reason, so my tounge is constantly bleeding and hurting and is raw and I have complete absence of sense of taste), amytriptolyne (should help with sleep and a certain componet of the migrain part of the triple headache.), perscription nose-spray, prescription zyrtec, OTC muscenex, prescription metamuscle (it is bought OTC, but my gastroenterologist makes me take it on the grounds that since I only BM every two weeks, and when it does come, it is hard, big, and slow... and I have fissure in my anus that I lose a lot of blood from... and all of this hurts), prozac (200 mg) for extreme depression (this has the unintended side effect of rendering me completly void of all emotion... positive or negative), Thyroid medicine for poor thyroid, prescription previcid (I have hellish acid reflux), and a few others... my short term memory is going.

All of this and I'm still miserable. You can see why I hate medicine. Taking this many means I am sick to my stomach a lot to. I just want to be healthy like other people my age. Not being able to work makes me feel useless. I just dream of moving off... it might be nice to at least live where it is beutiful... rather it helps or not has become extranuos.

I'm sick across the board, my only saving grace is intellect.
 
Old 08-10-2012, 11:50 PM
 
Location: Tucson for awhile longer
8,869 posts, read 16,313,683 times
Reputation: 29240
If the map I have consulted is correct, Haughton is reasonably close to Shreveport, home of the Louisiana State University Medical Center, also known as "University Hospital" in Shreveport. Please call them. Ask to speak to an intake person in the mental health area. First tell them you are on Prozac, which is NOT working, and you are also taking 59 other pills prescribed to you for a huge variety of maladies. Ask them if it would be possible for you to be seen by a DIAGNOSTIC SPECIALIST. Don't overwhelm the intake person with too much information. Just answer their questions as simply as possible, stressing that you are at your wit's end. You want to intrigue them, not overwhelm them.

I'm not saying you need to be treated only for mental health. I don't think for a minute you are imagining your issues. I am among those who would put money on the fact that most of your symptoms are caused by very unusual allergies and your thyroid problems. But no one is going to know unless you are studied closely by someone who can look at the whole picture, keeping your depression, ADD, etc., in mind.

University hospitals are filled with teaching doctors who are much more on the cutting edge of research than small-town physicians are. Also, they are usually on a flat salary and not dependent on charging insurance companies per visit. You haven't mentioned where you found these doctor(s) who prescribed all your MANY medication to you, but I'd be willing to bet it wasn't any one person who was looking at your whole interactive body.

Please, please, see a well-educated diagnostician who can then direct you to various needed specialties while overseeing your care. I'm suggesting you start with mental health only because your very compelling story is dramatic and will intrigue a person who is interested in helping someone who is as unhappy as you obviously are. Also, teaching hospitals like unusual cases so they can share your issues with medical students. You may even be eligible for a study program that would enable you to be seen without cost to you.

Best of luck for an improved future.
 
Old 08-11-2012, 09:11 AM
 
Location: Southern Illinois
10,364 posts, read 20,791,358 times
Reputation: 15643
And please be careful with the tylenol--if taken in doses even slightly above the recommended dose, it can damage the liver.
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