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Old 06-07-2009, 10:39 PM
 
1 posts, read 3,141 times
Reputation: 10

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Last Friday, I took my six year old daughter to the eye doctor because she couldn't see well with the eyeglasses that another doctor had prescribed. This new doctor explained to me that my daughter has Keratoconus. He told me that she sees "double vision", and that she was going to need special lenses. He didn't seem concerned about anything. However, before I left the office, I told the nurse to write down the name of the diagnosis so that I could research it online. What I have learned online is that is is a disease that progresses, and it could worsen. To the point that some patients have to get cornea transplants. I am devastated. I can not believe that the doctor didn't explain the severity of the disease. Tomorrow I will go back to the doctor's office and request more information, and request a second opinion from a specialist in San Antonio. I need help finding a good eye specialist.

Lupita
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Old 06-07-2009, 11:22 PM
 
592 posts, read 2,025,435 times
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it always good to get a second opinion and even a third if needed
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Old 06-07-2009, 11:33 PM
 
Location: Washington, DC & San Antonio, TX
791 posts, read 3,961,240 times
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I recommend Dr. Dudley Harris with the San Antonio Eye Center. He is not just an "eye doctor" but an opthalmological surgeon who is extremely thorough in his exams, diagnoses and will explain everything to you along with possible treatment options, etc. I must admit, his manner is not very warm, but he is very thorough and provides excellent care. They have one office downtown on McCullough, a northside location near 281 & 1000 Oaks, and a southside location near 35 & SW Military. Most of the doctors on staff are bilingual and their website is San Antonio Eye Center Best of luck with your daughter.
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Old 06-07-2009, 11:36 PM
 
57 posts, read 310,295 times
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I'd be looking for a good lawyer too. Why did the first eye doctor miss such a crucial diagnosis???
Sorry, I don't know of any "reputable" ones in S.A, but good luck whatever happens.
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Old 06-08-2009, 05:19 AM
 
14,637 posts, read 35,042,880 times
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If she took her to an optometrist, there's the reason it was missed or "under-diagnosed"--they are not as thoroughly trained as an ophthalmologist.

My son was seeing Dr. Zwaan, in the medical center, for his eye condition. However, Dr. Cash has gotten rave reviews on here as a pedi ophthalmologist.

Children's Eye Center-South Texas: Mc Cash Charles S MD
1314 E Sonterra Blvd # 5201
San Antonio, TX 78258

(210) 340-6633‎
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Old 06-08-2009, 07:35 AM
 
905 posts, read 2,960,611 times
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Quote:
Originally Posted by CelesteDF View Post
I recommend Dr. Dudley Harris with the San Antonio Eye Center. He is not just an "eye doctor" but an opthalmological surgeon who is extremely thorough in his exams, diagnoses and will explain everything to you along with possible treatment options, etc. I must admit, his manner is not very warm, but he is very thorough and provides excellent care. They have one office downtown on McCullough, a northside location near 281 & 1000 Oaks, and a southside location near 35 & SW Military. Most of the doctors on staff are bilingual and their website is San Antonio Eye Center Best of luck with your daughter.
I would also recommend Dr. Harris. He is extremely thorough and his manner is rather cut and dry, but he is an excellent choice.

I would also recommend Dr. Jeffrey Cohen at Medical Center Ophthalmology. He removed a tiny metal fragment from my son's eye a few years ago. His manner is also cut and dry, but he is also an excellent pediatric ophthalmologist. There are several doctors at this clinic and one may specialize in the issue your daughter has.

Medical Center Ophthalmology Associates, San Antonio's largest private group of eye care specialists. | Lasik | Ortho-K | ReZoom ReSTOR Crystalens | Pediatric Eye Care | Dry Eye Treatment | Optical Shop | Contact Lens Fittings (http://mcoaicare.com/optometry/optometry/eye-care/ophthalmology/san-antonio-private-eye-care-specialists/ - broken link)

I'm not sure why the doctor didn't explain the disease any better for you. Of course, when you are hit with such a revelation, it's hard to know what questions to ask, and some doctors just don't supply you with enough information unless you specifically ask them. However, if the doctor is rude about answering your concerns, I'd find another doctor! Perhaps when you return you might go armed with a list of questions. Good luck and best wishes for your daughter.
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Old 06-08-2009, 08:48 AM
 
4,796 posts, read 15,371,909 times
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What part of town are you located? There are quite a few REALLY good Ophthalmologists in town. You're a smart mom to be so proactive. I wouldn't waste the money going back to that doctor. And a lawyer isn't really warranted since no damage has been done. After you get other information from other doctors, you may want to at least contact the Texas Medical Board and see if this situation would need to be reported. Here's the link http://www.tmb.state.tx.us/default.php
Good luck with your daughter...kudos for being a good mom!
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Old 06-08-2009, 10:58 AM
 
44 posts, read 77,418 times
Reputation: 30
Default Keratoconus

I have been living with Keratoconus for the past 11 years now. I was first diagnosed when I went to obtain my driving permit at the age of 16. Since then, I have worn Rigid Gas Permeable lens for my eye condition. I have never tried glasses or soft lenses due to the fact that my optometrist informed me that they would never work. From the years of research I have gathered, this is an hereditary condition in which 2 of my uncles, myself and my youngest brother have acquired. One of the biggest challenges I have run across with this eye condition is vision companies not wanting to cover the significant cost of these special lenses at 100%. Every time I need new lenses which is mostly every year due to the dramatic changes of MY cornea, I have a huge battle with the insurance company. Recently, I have been researching a procedure that is called INTACS. I have been told that this is a procedure that can correct the keratoconus problems without having a cornea transplant. From what I have been told, there is an INTACS specialist here in the San Antonio area. I am not sure what can be offered to your daughter due to her age, but I would suggest you make this a priority and keep on it. There is a plethora of information out there now, that I did not access to when I was first diagnosed. If I can be of any help, feel free to contact me.
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Old 06-08-2009, 11:46 AM
cjw
 
125 posts, read 480,340 times
Reputation: 141
Quote:
My son was seeing Dr. Zwaan, in the medical center, for his eye condition.
My son (12) also sees Dr Zwaan and I like him. He took over the practice of Dr Muma (we started with
Dr Muma 12 years ago).

I once took my son to another eye Dr and his exam was a joke (not an opthalmologist). What a waste of money.
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Old 06-08-2009, 12:40 PM
 
44 posts, read 77,418 times
Reputation: 30
I was recommended to Dr. Tomy Starch at UltraVision. He is certified and is very well versed with the in's and out's of Ophthalmology services.
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