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I thought I would update folks that were wondering or might be going through the same. I had an appt. w/the retina specialist today, she was very nice. (Apparently mine is pretty bad and I'm young to have gotten this - anyway: After testing my eyes, pressure, dilation, etc. - Dr. said she had samples of Eyelea (the recommended treatment) as it otherwise has to be approved prior by ins. co. - they put in numbing drops, then eventually Betadine, then m,ore numbing. Again, after a bit - Dr. comes in to give an eye injection of numbing (didn't feel it) - then again a wait but then the the injection of Eylea, again, didn't feel it.
I currently have a feeling of grittiness - NOT allowed to even touch eye for at least 24 hrs. (that part will be tough). I go back in 4 weeks for another injection. She said there is about a 70% chance of improved vision after 6 mos. or so (fingers crossed).
A bit challenging to drive home (and make a quick grocery store stop on the way home, I wanted something easy for dinner
Apologies for any typos as I'm still dilated, see a spot from the injections - supposed to clear up in 24 hrs. or so.
I would appreciate hearing from people that have/are going through this.... I personally have a little more vision but the blood from the injections spread - feeling like I have more visual issues. I realize that after only one treatment it wouldn't be gone but......
I was hoping that those going thru this would post. I had my 3rd treatment today (lots more eye watering and eye pressure/pain) - seems like a Tiny bit of central vision has come back but she doesn't think it will fully - thinks we should continue the treatment plan though.
I have macular degeneration, but the dry type. Was diagnosed with geographic atrophy in December. It is an advanced and faster moving type of dry macular. I am currently going for shots for both eyes. I have done a lot of reading to educate myself, but since I don't have wet, can't offer a lot of advice, except keep seeing your retina specialist.
I'm also doing a lot of reading about all of the devices out there that help people with low vision. There also are specially trained occupational therapists that work with people with low vision. When my vision gets bad enough, I will definitely go that route. I'm told usually insurance will pay for the therapy.
I'm a big believer in learning everything I can to deal with this disease, because it is quite scary to say the least.
I wish you well also! I was told that not all realize they have the dry kind and that I was young to have and for it to be so advanced - 3 treatments so far - not seeing alot of difference - I hope you have better luck.
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