Restrictive Lung Disease

[Parnassia]

Originally Posted by Buckeye77

I watched my first wife die from ALS, and my second wife die from small cell carcinoma. I think they both had it tougher than what I have to deal with. They were both very strong women. God Bless them both.

So very sorry to hear about your wife OP! My mother had ALS. It has to be one of the worst diagnoses out there.

[Buckeye77]

Had a 6 month PFT done a couple of weeks ago. Lung capacity is down to 58% (was 66% on the first test). One of the conclusions was that I have the lungs of a 102 year old man (I'm 77)! Somehow, that struck me as funny. This was all at my PCP office. They are referring me to a different pulmonologist, since I did not care for the first one they sent me to.

[Hawk J]

Originally Posted by Buckeye77

From what I've read, it isn't pretty. Once I need supplemental oxygen, its pretty much down hill from there, and it was suggested I plan on up to 6 months in Hospice, and will be essentially bedridden.

I watched my first wife die from ALS, and my second wife die from small cell carcinoma. I think they both had it tougher than what I have to deal with. They were both very strong women. God Bless them both.

I'm very sorry your beloved wives passed on, my friend. May they Rest In Peace.

It might help your Quality of Life if you got a prescription from your doctor for an Inogen Oxygen Concentrator. Often Medicare will pay for it, or if your a Veteran, you may qualify for one.


https://www.google.com/search?q=Inog...client=gws-wiz

Many folks have said the Inogen really helps with their breathing, which gives them a better life & they are able to once again do activities they loved before being diagnosed with COPD, etc.

Best of Luck to you, pard.