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Thanks again to everyone who've shared their experiences. Mom's been home for about a week. Because of her Alzheimer's she doesn't quite know where she is and keeps asking when she's going home and also if she's going to get better, which is heartbreaking. We think she might need more care than can happen at home, but right now it's one day at a time.
As I've mentioned before, my mom was recently diagnosed with Alzheimer's after a few years of cognitive decline, and has been having health issues. She had a setback last week, and the hospital has brought up hospice care to my dad. Hearing that was a punch to the gut. Logically, I know that she's in her 80s and her health is declining and hospice can be a dignified next step, but emotionally, it's my *mom* and I don't want to think about it. Does anyone have experiences to share? (Or want to tell me that I'm being a big baby and to get over it? )
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Originally Posted by fleetiebelle
Thanks again to everyone who've shared their experiences. Mom's been home for about a week. Because of her Alzheimer's she doesn't quite know where she is and keeps asking when she's going home and also if she's going to get better, which is heartbreaking. We think she might need more care than can happen at home, but right now it's one day at a time.
I'm sorry to hear of your situation and know firsthand how it affects immediate family. I am an only child and had this happen separately with both parents over the course of three years. I would highly suggest attempting to secure an opening at a private hospice facility where your Mom can receive the best care, around the clock and minus a bill in most instances when considering not-for-profit facilities. Having this take place at home not only affects the well-being of your loved one with often inconsistent care from visiting hospice care but also the well-being of yourself and other family exposed to the horrible decline in front of your eyes, and the unpleasant memories living there after the fact. There's a reasoning many use that they want this to happen at home but in the case of most Alzheimer's patients with dementia, most have no idea of where they are while in advanced stages. So why extend your/your family's suffering?
My dad’s health is failing and my mom has gotten good and comforting information from Hospice Nurse Julie, who is on facebook and has a freestanding webpage. We both follow her and talk about her various videos. It’s helped us both prepare for the inevitable.
I had good experiences with hospice with both my mom and my dad.
Kind and caring, a special kind of people.
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