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Old 03-13-2018, 04:42 PM
 
Location: Redwood City, CA
15,250 posts, read 12,952,205 times
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I had an “incidentaloma” — an accidental finding while imaging something else. My left ovary has two complex cysts. Complex in this scenario means the cyst is filled with solid material, not fluid. Possibly malignant. No way to know for sure without removing the ovary.

My OB/GYN recommends removing both ovaries and Fallopian tubes. Or we can take a wait-and-see approach to see if the cysts resolve.

What would you do?
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Old 03-13-2018, 04:44 PM
 
Location: Texas
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Why wouldn't they just take the left ovary?
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Old 03-13-2018, 04:52 PM
 
Location: Redwood City, CA
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She said she wanted to make sure I would never have to worry about ovarian cancer again.

And that there’s no way to tell if the bad cells (should they exist) have spread.
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Old 03-13-2018, 05:04 PM
 
Location: Georgia, USA
37,105 posts, read 41,238,832 times
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Quote:
Originally Posted by fluffythewondercat View Post
I had an “incidentaloma” — an accidental finding while imaging something else. My left ovary has two complex cysts. Complex in this scenario means the cyst is filled with solid material, not fluid. Possibly malignant. No way to know for sure without removing the ovary.

My OB/GYN recommends removing both ovaries and Fallopian tubes. Or we can take a wait-and-see approach to see if the cysts resolve.

What would you do?
What kind of imaging was it? How large are the cysts? How old are you?

One option would be to remove the left ovary and have the pathologist examine it while you are still under anesthesia. If it is malignant - and we all certainly hope not - then a game plan can be in place to guide what additional surgery should be done. The process, called frozen section, does generate some false positives and false negatives.

I would strongly suggest that you consult a gyn oncologist. Many generalist OB/GYNs do not have a lot of experience with gyn malignancies.
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Old 03-13-2018, 05:05 PM
 
Location: Texas
44,254 posts, read 64,342,342 times
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Quote:
Originally Posted by suzy_q2010 View Post
What kind of imaging was it? How large are the cysts? How old are you?

One option would be to remove the left ovary and have the pathologist examine it while you are still under anesthesia. If it is malignant - and we all certainly hope not - then a game plan can be in place to guide what additional surgery should be done. The process, called frozen section, does generate some false positives and false negatives.

I would strongly suggest that you consult a gyn oncologist. Many generalist OB/GYNs do not have a lot of experience with gyn malignancies.
I agree with everything here.
Usually they can and do send path specimens during surgery.
I would not recommend the wait and see approach. Not if it were me.
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Old 03-13-2018, 05:43 PM
 
Location: Omaha, Nebraska
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OP, follow suzy_q2010's advice. It's excellent.
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Old 03-13-2018, 06:05 PM
 
Location: Redwood City, CA
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Originally Posted by Aredhel View Post
OP, follow suzy_q2010's advice. It's excellent.
I think so, too. I’m indebted to you all.

I plan to ask my PCP for a GYN oncology referral.
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Old 03-13-2018, 06:25 PM
 
Location: Georgia, USA
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Originally Posted by fluffythewondercat View Post
I think so, too. I’m indebted to you all.

I plan to ask my PCP for a GYN oncology referral.
Please keep us posted. We are rooting for you!
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Old 03-13-2018, 07:00 PM
 
Location: Redwood City, CA
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Quote:
Originally Posted by suzy_q2010 View Post
What kind of imaging was it? How large are the cysts? How old are you?
Ultrasound. Left ovary 2.1 x 1.0 x 0.9 cm. The maximum diameter of the larger cyst is 1.4 cm. I am 64.
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Old 03-13-2018, 07:14 PM
 
Location: Georgia, USA
37,105 posts, read 41,238,832 times
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Quote:
Originally Posted by fluffythewondercat View Post
Ultrasound. Left ovary 2.1 x 1.0 x 0.9 cm. The maximum diameter of the larger cyst is 1.4 cm. I am 64.
Thanks for the info. Your age rules out any of the kinds of cysts that might result from simple egg follicles or ovulation.

The cyst is small, but the solid component is worrisome. It's not 100% likely to be malignant, but removal would be a strong consideration.

https://womensvoicesforchange.org/ov...hat-to-ask.htm

If it were me, I would not want to miss the opportunity to remove an ovarian cancer when it was very small and potentially curable.

Have you had the CA-125 blood test?
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